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Help for parents of babies with complex heart problems

Learning you are having a baby is an exciting time. Learning you are having a baby with a complex heart problem is a challenging time, too. At Inova Children's Hospital we have developed a Single Ventricle Program to help you and your family through this journey.

There are several types of single ventricle heart problems your baby could have, including:

  • Hypoplastic left heart syndrome (HLHS)
  • Variations of HLHS with hypoplastic (small) aorta or small left ventricle
  • Double inlet left ventricle
  • Pulmonary atresia with hypoplastic right ventricle
  • Unbalanced atrioventricular (AV) canal defect

Our Single Ventricle Program is designed to help you and your baby go home after surgery, safely and with extra support. The following information details the various parts of the program.


Home monitoring

Our home monitoring process is designed to find and prevent problems in fragile babies at home between their first and second heart surgeries. We have learned that a simple daily check can help us find important problems early. Each day you will need to weigh your baby on a baby scale and measure the oxygen in the blood using a Band-Aid like device. You will write the weight and oxygen level in a notebook. You are asked to call your cardiologist if your baby does not reach the goals for weight gain and oxygen levels. We will teach you when to be worried and when to call.


CPR for home

You and anyone who cares for your baby will learn CPR. You will be given a CPR kit with a doll and a DVD from the American Heart Association which is yours to keep. You will take it home and we ask you to share it with other family members and caregivers.


Cardiac feeding team

Good nutrition is very important for your baby to do well after surgery. A group of specially trained staff (nurses, dietitian and speech therapist) will work with you to get your baby to grow and eat before going home from the hospital. Many babies with single ventricles have trouble eating all their food by mouth. If this is true for your baby, you will learn about feeding your baby with a tube that goes through the nose (NG or nasogastric tube) or directly into the stomach (GT or gastrostomy tube). Tube feeding may be the best method for providing your baby a healthy diet for the best growth and development.

If you would like to breastfeed, we want to support you. Breast milk provides many benefits for your baby. Our lactation and feeding teams are here to help. Breastfeeding may not be possible right after surgery. We still prefer your baby to have breast milk, if possible You can pump the milk and we can give it to your baby. We may need to add extra calories to the milk to help your baby grow. We may need to put your milk through a tube to help your baby eat. We will make every effort to help you and your baby to breastfeed, but this may take some time.


Rooming in before you go home

To be sure you are comfortable caring for your baby at home, we will ask you to spend at least a full day and night caring for your baby before you leave the hospital. We will have you:

  • Give all the medicines your baby will take at home
  • Feed your baby using whatever equipment is needed
  • Practice all the skills you will need to care for your baby (weighing and measuring the oxygen level)

You will need to plan ahead for time off from work or for childcare for other children while you stay at the hospital. If you are at the hospital a lot, set a goal to learn one thing about caring for your baby every day. This will make rooming in easier.


Single Ventricle Clinic

Once you and your baby go home, you will have alternating appointments with your primary cardiologist and our Single Ventricle Clinic. The clinic visit includes a cardiology visit but also has a dietitian and speech therapist at each appointment. This helps to make sure your baby continues to grow and progress from the first surgery to the second surgery. The clinic is located on the Inova Fairfax Medical Campus.


Our team

Members of Inova's Single Ventricle Program team include:

Cardiac surgeons


Dr. CollazoLucas Collazo, MD
Cardiac Surgeon
 
Dr. Lucas Collazo is a board certified cardiac, thoracic and congenital heart surgeon and is affiliated with the physician group Inova Cardiac and Thoracic Surgery in Falls Church, VA. Dr. Collazo is the Medical Director of Pediatric and Congenital Cardiac Surgery at Inova and serves as the Surgical Director of the Adult Congenital Heart Program.
 

Dr. CardarelliMarcelo Cardarelli, MD
Cardiac Surgeon
 
Dr. Marcelo Cardarelli is a pediatric cardiac surgery physician and is affiliated with the physician group Inova Cardiac and Thoracic Surgery in Falls Church, VA. Dr. Cardarelli has a special interest in management of critical congenital heart disease in newborns.
 
 

Cardiologists


Dr. AnsongAnnette Ansong, MD
Single Ventricle Clinic cardiologist
 
Dr. Annette Ansong is a board certified physician in Pediatric Cardiology and Pediatrics. She graduated from Howard University and completed her residency and fellowship training at Duke University Hospital.
 
 

Dr. RudraHarish Rudra, DO
Single Ventricle Clinic cardiologist
 
Dr. Harish S. Rudra is a board certified physician in Pediatric Cardiology and Pediatrics. He graduated from Midwestern University, completed his residency at Inova Fairfax Hospital for Children, and was fellowship trained at Ann & Robert Lurie Children's Hospital of Chicago.
 
 

Single Ventricle Program team members


  • Chuck Bailey, PA – Physician Assistant
  • Shelly Fleischer, PA – Physician Assistant
  • Kristine Lewis, MSN, RN – Single Ventricle Clinic coordinator
  • Melissa Eartherly, FNP-BC – Fetal Care Center Lead
  • Kimberly Hill, MS, CCC-SLP – pediatric speech-language pathologist
  • Karyn Theis, RD – pediatric dietitian


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